Kaitlin Laing

Aug 10, 2024

Know that you are not alone. I was 18 and just starting my first day of university when my mom was diagnosed with ALS. Now I’m 22, and this week was the second anniversary of her death. Caring for my mother, constantly worrying about her condition, and not...

Brian Larson

Aug 10, 2024

We took several great trips in the first couple of years, but he eventually became wheelchair-bound and his world shrank to what he could access through his eye gaze computer. At 28 years old, my son Ryan was thriving in his career, owned a house, and had a great...

Victoria Vinall

Aug 10, 2024

My dad lived with ALS while I was 5-12 years old and passed away in 2006. I work in Democratic politics but I rarely share my story. My dad lived with ALS while I was 5-12 years old and passed away in 2006. ALS is a horrible, traumatic disease that ruins many lives....

Jenny Smolinski

Aug 10, 2024

Parenting young kids with ALS adds another layer to an already difficult path of living with ALS, but every day I pray a treatment is discovered so no families have to go through this. I am currently 43 but was diagnosed at age 35 in 2013 when my daughters were 1 and...

Kathy Lamarre

Aug 10, 2024

She had the biggest heart and cared about everybody. My sister Sheryl Zemaitis Pastore suffered for 3 horrendous years until she had no more fight left and passed away on December 16, 2019. My sister Sheryl made more quilts for people with disabilities, diseases, or...