Kate Frost Fink

Aug 10, 2024

I have seen ALS take members of my family away from C9orf72 related ALS/FTD. I refuse to let the disease take who I am away. I was diagnosed with ALS in Oct. 2019 and am living with it. I’m in my late 40’s blessed with a husband, two daughters, a son in law and...

Anthony Rosello

Aug 10, 2024

In memory of my father, it has become my lifelong goal to be there to support and advocate for change for anyone that is currently or will be battling through this in the future. I’m the eldest son of Donald Rosello, a Vietnam War veteran, father of two boys, husband...

Scotty Giese

Aug 10, 2024

ALS hit our family like a freight train. My Grandmother, “Granny” was diagnosed at age 82. She had lived an incredible life and was always very healthy and active. ALS hit our family like a freight train. We found out about the diagnosis only weeks before...

Linda White

Aug 10, 2024

I have lost 4 immediate family members to ALS: Mother, Uncle, Cousin and Grandfather. I have lost 4 immediate family members to ALS: Mother, Uncle, Cousin and Grandfather. Our family suffers from the rare familial disease that afflicts speech first and moves very...

Amanda Hunt

Aug 10, 2024

Now I am a single mom of 3 crazy fatherless boys all because ALS took the person I loved most in this world. I am a 33-year-old widow of ALS with 3 boys, 6, 4 and 2. My husband died of ALS last May. He was diagnosed on Oct. 15  and died on May 1st. The day his...