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Karen Gordon

My brother passed away on July 13th 2021 at age 51. He was a courageous and brilliant brother and a wonderful friend. My brother passed away on July 13th 2021 at age 51. He was a courageous and brilliant brother and a wonderful friend. He had four amazing kids. He had...
Bonnie Sue Stephan

Bonnie Sue Stephan

I am now 67 and have lost 2 friends to this terrible illness. Leonard Parker was my Dad. He was 50ish when diagnosed and I was 20ish. I am now 67 and have lost 2 friends to this terrible illness. One, Vaughn, 2 weeks ago, the other, Rocco, 2-3 years ago. Vaughn in...

Ann Lynch

My grandpa was diagnosed with ALS when I was 4. My grandpa was diagnosed with ALS when I was 4. His friend took him for all kinds of experimental treatment like snake venom injections. His diaphragm muscle stopped responding when I was 10. They gave him 6 months to...

Bruce Davis

My brother faced this disease with courage and humility. It is a devastating disease, for the person, and family/caregivers. In 2004, my late brother, Bill Davis, lost his battle with ALS. He was 64 years old. In 2000, he retired after 36 years in law enforcement. He...
Matthew Orman

Matthew Orman

Every time I put my flight gear on I think of him and know he’s there with me while I fly. In October 2014 I found out my father and best friend was diagnosed with ALS. I was stationed at the time at MCAS Miramar learning to fly the F/A-18 and at that moment, driving...