Caroline Cooper

Aug 10, 2024

I miss my dad every day. I thought I was going to have him forever. I wasn’t prepared to see him go. I encourage you to tell your loved ones how special they are to you. To take pictures of everything, all the time, for they will one day be so important. My...

Lisa Jensen

Aug 10, 2024

We joined walks to raise money and awareness and donated money in the hopes of a cure. My Dad died from ALS in 1994. His diagnosis opened a can of worms. We started hearing from aunts, uncles and cousins on his side, misdiagnosed and lost to us through lack of...

Ashleigh Howland

Aug 10, 2024

We promised to continue fighting for him and all pALS and that’s just what we plan to do! Hi my name is Ashleigh. I am the oldest daughter of three, to Terence “Terry” Wilkin, who sadly passed away at the young age of 56, on Sept. 30, 2020 after a 10 month battle...

Mary Kusior

Aug 10, 2024

Son Marcus Noble diagnosed with ALS, followed at Mass General. Son Marcus Noble diagnosed with ALS, followed at Mass General.

Selena Castro

Aug 10, 2024

Our story, like many, has no known cause. My dad was diagnosed with ALS in August 2018. I didn’t know exactly what it meant when my mom told me, but after looking it up and seeing the words, ‘always fatal,’ I of course broke down. My dad was one of...