Marie Hensel
Watching how my once vivacious mom suffered with this disease that took everything from her was devastating. This disease is beyond cruel. My mom was officially diagnosed in April 2020 and this cruel disease took her from us on her 64th birthday on March 7, 2021. She...
Kimberly Wilkins
There are a total of 10 children among my siblings and me who may also be gene carriers. My grandfather (whom I never met), my father, and my brother have passed from ALS. I am an ALS gene carrier. There are a total of 10 children among my siblings and me who may also...Paul Mohl
I am 77 years old, a retired academic physician. When I was in medical school of all the horrible diseases I most feared was ALS. 4 years ago my nephew was diagnosed with it. He died a couple of years later. A year and a half after that I began noticing very mild,...