Laura Hanson

Aug 10, 2024

On my way home from his memorial I started to notice foot drop. In June 2019 my dad died from ALS. He told us, his children, that it was not genetic and we don’t need to worry. On my way home from his memorial I started to notice foot drop. Two and a half years...

Karen Madrigal

Aug 10, 2024

So far, I’ve lost 3 brothers and my baby sister has ALS. I’m tired of watching my siblings die one by one. So far, I’ve lost 3 brothers and my baby sister has ALS. I have the C9orf72 gene for familial ALS. If my sister had access to Nurown, she would likely not be in...

Philesha Shoats

Aug 10, 2024

One cannot put into words how much I miss him — more so now as I’m getting married and my love is so much like him. My hero, My fixer, My defense This is my dad. He built our house from the ground up, ran a successful muffler business by himself for over 20...

Margo Kelly

Aug 10, 2024

Because of misdiagnosis and finding out she had ALS at a moderate/advanced stage, it went quick, too quick. My name is Margo and I lost my mother in December of 2019 to ALS. I feel like if I had known more about ALS, I could have tried to help more and understand what...

Marie Hensel

Aug 10, 2024

Watching how my once vivacious mom suffered with this disease that took everything from her was devastating. This disease is beyond cruel. My mom was officially diagnosed in April 2020 and this cruel disease took her from us on her 64th birthday on March 7, 2021. She...