Brendan Hardy

Aug 10, 2024

I gained a true appreciation for every moment I was able to spend with her, whether we were taking her devoted chihuahua for a walk, seeing her beloved James Taylor live in concert, or simply enjoying a movie together in our living room. I read recently that Abraham...

Stuart Williams

Aug 10, 2024

Deb’s model to others derived from her selflessness and her ability to bear the suffering of ALS with a sense of meaning, purpose, and gratitude for her life. On March 13, 2022, we said goodbye to Debra Murphy Williams, a loving wife, mother, friend, sister, and...

Jason Woolsey

Aug 10, 2024

All he wanted to be when he grew up was a scout for the Texas Rangers. Tristen (T-Bone) (The Cats Pajamas) loved baseball, loved God, his family and the Texas Rangers. He loved stats and building ball fields. All he wanted to be when he grew up was a scout for the...

Mindy Uhrlaub

Aug 10, 2024

For several years, I kept my genetic results as a C9orf72 gene carrier a secret. The only people other than my doctor who knew were my husband, my brother, and my parents. I asked all of them to keep my news quiet until I told my kids three years later, when they were...

Daughter, Familial ALS Family Member, C9 Gene Carrier

Aug 10, 2024

I took the test because I knew it would be positive. I thought: “I take after my dad in so many things, why would this be any different?” ALS does not discriminate against race or gender – We are Latinos. I lost my dad to ALS. He was kind, genuine, generous, ate...