Connie Becker

Aug 10, 2024

My family has lost grandparents, parents, siblings, uncles, aunts, and their children to this disease. ALS has been in my family for over 100 years and won’t end until there is a cure. My family carries the SOD1 gene, which has taken the lives of 20 members of...

Suzanne Gallo

Aug 10, 2024

But we must maintain hope. Without hope, there is nothing. My dad, Robert Bartz, passed from ALS almost 6 years ago. When I was growing up, we lived in Wilmington, Delaware — then, proudly known as “the chemical capital of the world.” This was because the...

Lisa Martinez

Aug 10, 2024

I would do anything for her to live longer. My best friend Jamie Berry has ALS. She is 46 years old has a nine year old daughter and I would do anything for her to live longer.

Summer Christian

Aug 10, 2024

My mom was 68 years old when she was diagnosed with bulbar ALS in January, 2019. My mom was 68 years old when she was diagnosed with bulbar ALS in January, 2019. She moved in with me and my family and spent her last 6 months enveloped in love until she took her last...

Emmet Hardy

Aug 10, 2024

In that moment, I cannot put into words how proud of her I was, and how proud of everything that we achieved as a team. She always found a way to show me what true happiness, positivity, acceptance and gratefulness look like. There are so many memories with my amazing...