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Martha Rosario

Martha Rosario

It took our family by surprise — we didn’t know anything about it or what to do. My sister Elizabeth was diagnosed April 6, 2022 and this awful illness took her on August 19, 2023. It was so fast doctors couldn’t figure out what was wrong and when she was...

Alana Doran

So don’t do this alone, reach out, tell people what you need. In 1997 I lost my father to ALS after a 4 year long battle. I was 8 years old. My life has been a struggle, but I am so grateful to be alive. I live for my dad, Alan – who I am named after. My...
Alexis Behan

Alexis Behan

An estimated ten members of my family have been diagnosed with ALS including my younger brother, father, grandmother, aunt and uncle. My name is Alexis and I carry the SOD1 ALS gene. An estimated ten members of my family have been diagnosed with ALS including my...

Kaitlin Wilcox

Throughout my father’s entire journey- struggle with diagnosis, denial, anger- my Mom’s health took a significant decline. We have no family history of ALS. In 2018 my father started experiencing a strange set of symptoms such as shortness of breath and...
Cassandra Haddad

Cassandra Haddad

We have lost at least 33 family members to ALS including my mother on Aug 30 2022. We have lost at least 33 family members to ALS including my mother on Aug 30 2022. I am a genetic carrier of SOD1 A5V an aggressive form of ALS. I fight in memory of my family, for my...