Connie Becker

Aug 10, 2024

My family has lost grandparents, parents, siblings, uncles, aunts, and their children to this disease. ALS has been in my family for over 100 years and won’t end until there is a cure. My family carries the SOD1 gene, which has taken the lives of 20 members of...

Katy Driscoll

Aug 10, 2024

This disease has robbed her of her ability to speak, walk, smile and be independent. My 59 year old mother was diagnosed in 2019 after we noticed her speech had begun to slur. This disease has robbed her of her ability to speak, walk, smile and be independent. My...

Karen Madrigal

Aug 10, 2024

So far, I’ve lost 3 brothers and my baby sister has ALS. I’m tired of watching my siblings die one by one. So far, I’ve lost 3 brothers and my baby sister has ALS. I have the C9orf72 gene for familial ALS. If my sister had access to Nurown, she would likely not be in...

Rose Joyce

Aug 10, 2024

This has been a long fight, but we keep fighting together! My name is Rose Joyce. I lost my Aunt to ALS many years ago, and my Dad has just been diagnosed. This has been a long fight, but we keep fighting together!

Jeanne Hunter

Aug 10, 2024

My brother was diagnosed with ALS about 2 years ago. He will be 70 in January 2022. My brother was diagnosed with ALS about 2 years ago. He will be 70 in January 2022. He has a type of the disease called “Flail Arm Syndrome”. He has been going to the ALS clinic at the...