Meredith Burns

Aug 10, 2024

She smiles and her love is immensely present. I am Meredith, a 40 YO mother of 3 young children, and my beautiful, extraordinary Mother. Ellen Steiner was diagnosed with ALS nearly two years ago. My mom, a former elementary school teacher and makeup artist for burned...

Adam Thornbury

Aug 10, 2024

His attitude is contagious. He says everyday is a good day. My father, Dan W. Thornbury, has been living with ALS for 3 and a half years. He now has very late stage ALS. His attitude is contagious. He says everyday is a good day. He is an inspiration and I couldn’t be...

Sherry Panetti

Aug 10, 2024

How does a healthy, athletic young man get ALS at the age of 33? Why did it take 16 months to diagnose? How does a healthy, athletic young man get ALS at the age of 33? Why is there no treatment or cure after this disease has been known about since 1869? There is no...

Jillian Whitten

Aug 10, 2024

How can a semi-truck come to assail my child and I can’t move to save her? A story I don’t want to write. A life I don’t want to live. A diagnosis I don’t want to be true. A child I beg not to die. Tick tock. Tick tock. Your daughter, a...

Mira Klingenberg

Aug 10, 2024

His goal is to stay alive until his little girl is old enough to remember him. My son Matt, 37 years old, married to Kelly, with 3 little kids, has ALS. He was diagnosed in March 2018. He was in the NurOwn phase 3 trial, also in EAP 1 & EAP 2. He knows it helps...