Alexis Harvey

Aug 10, 2024

I was a teenager when we learned that my grandmother would not survive ALS. I remember watching her move a pointer slowly toward the letters for I LOVE YOU, the last time that I saw her alive. I was a teenager when we learned that my grandmother would not survive ALS....

Lakeia Nard

Aug 10, 2024

King’nazir Gates is five years old. He suffers from the sptlc2 gene mutation putting him under pediatric/juvenile ALS. King’nazir Gates is five years old. He suffers from the sptlc2 gene mutation putting him under pediatric/juvenile ALS. Working endlessly with...

Lisa Cross

Aug 10, 2024

My progression is slow, and I rejoice! I love life and will fight this disease with everything that I am.  It’s a Family Affair. So far, four of eight children have tested positive for C9orf72. Two have manifested ALS; one of those two has passed. I am the other. I...

Deborah Stiewing

Aug 10, 2024

She is too young! She just got married! She wants children! Her whole life is in front of her! No! No! Please dear god! It can’t be ALS! I thought for sure at the worst it was MS! She is too young! She just got married! She wants children! Her whole life is in front...

Sara Turner

Aug 10, 2024

Seeing him reduced to sitting in a wheelchair not being able to move, talk or do anything for himself has been absolutely terrible. My father is living with ALS. He is only in his early 50’s. He had so much time left to be able to do things with his family and then he...