DeVona Hickerson
This disease is a beast, and I will be a voice for critical therapies and a cure until I can be heard no more. My name is DeVona Hickerson. I was diagnosed with ALS on March 5, 2021. I was a very active person. In fact, in the fall of 2020, I was riding a bike on...
Brian Larson
We took several great trips in the first couple of years, but he eventually became wheelchair-bound and his world shrank to what he could access through his eye gaze computer. At 28 years old, my son Ryan was thriving in his career, owned a house, and had a great...
Jenny Smolinski
Parenting young kids with ALS adds another layer to an already difficult path of living with ALS, but every day I pray a treatment is discovered so no families have to go through this. I am currently 43 but was diagnosed at age 35 in 2013 when my daughters were 1 and...