Linda White

Aug 10, 2024

I have lost 4 immediate family members to ALS: Mother, Uncle, Cousin and Grandfather. I have lost 4 immediate family members to ALS: Mother, Uncle, Cousin and Grandfather. Our family suffers from the rare familial disease that afflicts speech first and moves very...

Natalie Davis

Aug 10, 2024

This all has been a learning experience for us all. We have 4 children and 1 grandson. My husband was diagnosed last year with MND & ALS. This all has been a learning experience for us all. We have 4 children and 1 grandson. We want answers and we want a cure. How...

Sarah Beers

Aug 10, 2024

My name is Sarah Beers, I have been very impacted by ALS, not only watching and caring for my family members going through it, but the potential of me and my three older brothers getting it when we are older. My beautiful mom passed away from ALS in October after...

Kristine E Moran

Aug 10, 2024

He was everyone’s favorite, made friends everywhere he went and with everyone he met. My incredible father died from ALS in August at the age of 70, 6 short months after being diagnosed right before Covid hit the US. He was everyone’s favorite, made friends everywhere...

Eric Chun

Aug 10, 2024

ALS is like drowning on land, like being buried alive. And until now, 100% fatal. I’m in the fight to change all that. I am a 49-year-old husband and father who is living with ALS. I grew up under the shadow of ALS. My family has the genetic SOD1 mutation. My...