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Mary Kusior

Mary Kusior

Son Marcus Noble diagnosed with ALS, followed at Mass General. Son Marcus Noble diagnosed with ALS, followed at Mass General.
Lisa Cross

Lisa Cross

My progression is slow, and I rejoice! I love life and will fight this disease with everything that I am.  It’s a Family Affair. So far, four of eight children have tested positive for C9orf72. Two have manifested ALS; one of those two has passed. I am the other. I...

Chip Carton

“They had me go in for a brain tumor,” he said, “and the doctor came in and said, ‘Oh no, you don’t have brain cancer.’ So, I was elated.” “It makes you look at life a different way.” – Chip Carton on living with ALS When Chip Carton arrived at his...

Katherine Brooks

My family was complete and we were building a beautiful future when on October 27, 2020 our world turned upside down — I was diagnosed with ALS. I am 52 years old, a working wife, mother and Christian. In 2005 I adopted a beautiful baby girl from China, my only...
Kate Frost Fink

Kate Frost Fink

I have seen ALS take members of my family away from C9orf72 related ALS/FTD. I refuse to let the disease take who I am away. I was diagnosed with ALS in Oct. 2019 and am living with it. I’m in my late 40’s blessed with a husband, two daughters, a son in law and...