I have lost 4 family members to Familial ALS. I have lost 4 family members to Familial ALS (grandfather, mother, brother & sister). When I saw that Lou Gehrig’s uniform # was 4 … I had to get one, and it’s now one of my favorite jerseys!...
It gives me hope that we will find effective treatments and potentially a cure within my children’s lifetime. Baseball is inspiring people to come together for a cause that devastated one of their legends and continues to devastate approximation 3,000 great Canadians...
My family has lost grandparents, parents, siblings, uncles, aunts, and their children to this disease. ALS has been in my family for over 100 years and won’t end until there is a cure. My family carries the SOD1 gene, which has taken the lives of 20 members of...
I lost my mother to ALS in 1997 and my brother to ALS in 2021. I lost my mother to ALS in 1997 and my brother to ALS in 2021. In that time span, while a lot has been done to keep PALS comfortable and they now have equipment (Tobii, personalized motor chair, etc.) to...
I think about whether we should buy more life insurance, if the extra cost is worth the gamble. I think about how we could make our house still livable if I were to be in a wheelchair. I think about whether I would decide to have a living funeral, so that I could see...
