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Brian Ashline

I have been a carpenter for 43 years and to not be able to use my hands is devastating. I was diagnosed with ALS in 2021 . It started in my left thumb then my index finger then the other 3. I lost muscle up to my left shoulder. This is when I started going to the...
Alexis Behan

Alexis Behan

An estimated ten members of my family have been diagnosed with ALS including my younger brother, father, grandmother, aunt and uncle. My name is Alexis and I carry the SOD1 ALS gene. An estimated ten members of my family have been diagnosed with ALS including my...
Steve Rudolph

Steve Rudolph

The saving grace is that I have a very slowly progressing version of the disease. Most people would not know that I have ALS unless they look at the twitching in my biceps. I was diagnosed with ALS about 2 years ago. I am 63 years old in the prime of life when I found...

Lindsey Heiser

I remember my sister and brother coming up to me and asking what my father was like when he was healthy. My father has had ALS for 15 years. Growing up I was fortunate enough to see my father in his “healthy” stage. I remember my sister and brother coming up to me and...
Cassandra Haddad

Cassandra Haddad

We have lost at least 33 family members to ALS including my mother on Aug 30 2022. We have lost at least 33 family members to ALS including my mother on Aug 30 2022. I am a genetic carrier of SOD1 A5V an aggressive form of ALS. I fight in memory of my family, for my...