I went to the doctor and ALS was the last thing on their minds because I was so young. I grew up knowing my family carried a disease called ALS. In August 2015 ALS hit close to home; my dad was diagnosed. I watched my strong, independent, hardworking father go from...
You can say we’re cosmic friends. LOL. I help during the day with the sun and he rolls in with the moon. My friend of six years needed my help and I ran to action with no hesitation. I took on the shared responsibility to help him take care of his mother who has...
My husband is the love of my life, my heart, my better half and losing him to this monster disease is criminal. My husband was diagnosed in November, 2018. For the first two years we thought his progress would be slow. But by the end of 2020, the disease progression...
It confirmed what we all knew, ALS had taken away everything but she was still the same person. My Mother, Virginia Loncar, died of ALS over 25 years ago. She was such a strong presence in our family. She is still remembered and talked about daily. Her battle with ALS...
In 2017, Tucker received genetic testing results indicating he inherited the SOD1 mutation that has been causing ALS within his family. To date, Tucker Olson has lost four family members to familial ALS (SOD1). Those lost include his grandmother, uncle, father, and...
