Thank you for joining us for the 2025 Community Summit in Washington, D.C.
Thank you to all the advocates, volunteers, and community members who joined I AM ALS in Washington, DC (and virtually) for the 2025 ALS Community Summit. This event brought us together to learn from each other, connect, heal, and mobilize. It was an incredibly powerful and inspiring event.
The week’s major activities and events included:
ALS Hill Days
Welcome Reception and Award Ceremony
Annual Flag Installation and Flag Ceremony
Workshops and panels with other ALS organizations, community members, and experts in the field
Our Stories, Our Flags, an interactive tour of the Flags that was new in 2025!
ALS Summit Panels & Keynote
Click any of the images below to watch the recordings of these important and informative sessions!
Legislating Caregiving
Moderator:
Dustin Watson, VP of Policy Advocacy at I AM ALS
Panelists:
Lara Garey, Elizabeth Dole Foundation, former caregiver of a Veteran with ALS
Rhonda Richards, Government Affairs Director at AARP
Ashley Lee, former caregiver of a Veteran with ALS
The Future of Research
Moderator: Bernadette Faretra, caregiver
Panelists:
Cassandra Holmes, MSN, APRN, FNP-C, Nurse Practitioner, Georgetown University
Danielle Boyce, MPH, DPA, Principal Investigator, Real World Evidence, ALS TDI & Board Member, GeoALS
Advocacy in Uncertain Times
Moderator: Tiffany Card, Director of Communications and Advocacy, ALS United Greater New York
Panelists:
Jack Silva, Co-Chair of Legislative Affairs Team, I AM ALS
Garrett May, JD, Co-Chair of Legislative Affairs Team, I AM ALS
Richard Bedlack, MD, PhD, Clinician and Researcher, Duke University
Peggy Plews-Ogan, MD, Brodie Professor of Medicine, University of Virginia; I AM ALS Board member
Randy Gregory, Jr., Co-Chair of Many Shades of ALS, I AM ALS
Deb Winters, Founder, Debba’s ALS Hope 4 Tomorrow
Dr. Richard Bedlack’s Keynote Address
Congratulations to the 2025 ALS Community Award Winners!
Huge thank you to our Summit sponsors and community collaborators:
