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#CallingAllCaregivers

Welcome! I AM ALS is committed to honoring caregivers year-round by amplifying their stories, providing valuable resources, and building a community of supportive peers. We’re recognizing caregivers across the neurodegenerative disease community, including those with ALS, FTD, Huntington’s, Parkinson’s, and Alzheimer’s. We invite you to explore this page’s stories, resources, action items, and donate to support the mission of I AM ALS. When you give, you fund our critical work to support, educate, and uplift caregivers.

Calling-All-Caregivers

I am a caregiver…

Last December, we shared the stories of these five amazing caregivers across ALS and other neurodegenerative diseases. Click on any of them to watch their story.

Meg

Meg Reyes

Katie

Katie Kirkpatrick

Robert

Robert Lemons

Sandra

Sandra Abrevaya

ileen

Ileen McFarland

Caregiver Stories

Brian Hutner

Brian Hutner

I started noticing strange shifts in heart rate, breathing, and energy levels.
Alan Waite

Alan Waite

She had a joyful presence that positively affected those around her.
Ken Dworkin

Ken Dworkin

My wife (caregiver) and I learned quickly that we had to self-advocate as very few professionals in the medical field understood much about the disease.
Laura Donkel

Laura Donkel

It is a sacred sadness that defines me and I live in deep joy and fervent gratitude for every moment we had as a family of four.
Scarlett Lugo

Scarlett Lugo

I’m a wife and mom of 3 from TX.
Thomas Grassi

Thomas Grassi

The one thing my wife and I loved to do was take trips on our motorcycle.
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Caregiver Resources

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