Healey Platform Trial Updates & The Les Turner ALS Foundation

About the Program: Join us for our June ALS Learning Series webinar — a collaboration with the Healey Center Community Webinars. Catherine Small, Patient Navigator for Healey ALS Platform Trial, will provide updates on current research and the Acceleration Centers of Enrollment (ACE) initiative, while Anne Marie Doyle, from the Les Turner ALS Foundation, will discuss resources available through the Foundation.

About the Speakers:

Catherine Small serves as the Patient Navigator for the HEALEY ALS Platform Trial, working centrally at the Sean M. Healey & AMG Center for ALS at Mass General Hospital while supporting recruitment and enrollment across more than seventy research centers nationwide. In her role as Patient Navigator, Catherine leads communication efforts to disseminate information about the Platform Trial and acts as an intermediary between people living with ALS, caregivers, clinicians, and study staff to address questions related to trial participation. Catherine leverages her bachelor’s degree in Neuroscience Psychology and previous clinical experience as a psychometrist to bridge conversations between scientists and the ALS community and build patient-centric partnerships in ALS research.

Anne Marie Doyle earned a Bachelor’s degree in Communication Sciences & Disorders from Saint Xavier University followed by a Master’s Degree in Speech & Hearing Sciences from the University of Illinois Urbana-Champaign.

For 13 years, she worked as a speech-language pathologist at Shirley Ryan AbilityLab serving both the inpatient and outpatient populations with a specialty in adult neurological conditions, including working with people living with ALS. She maintains a membership with the American Speech-Language & Hearing Association and participates in their Special Interest Group for Augmentative and Alternative Communication. She has lectured at the state, national, and international level, as well as participated in clinical research.