This calendar includes events of interest to people living with and impacted by ALS. If you would like to submit an event for consideration, please use this submission form.Unfortunately, we cannot post fundraisers for individuals.
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2 events,
The Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and accelerate the development of and access to treatments and cures. Click the link to sign up. An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […] |
4 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS […]
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Topic: End-of-Life Autonomy: A Conversation on ALS and Medical Aid in Dying Date & Time: Jul 29, 2025 01:00 PM Description Join us for a thoughtful and informative conversation with Dr. Robin Plumer and Jeremy Boal as we explore the topic of Medical Aid in Dying (MAID). Dr. Plumer will explain what MAID is, how […]
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Join us for a Town Hall that demystifies Brain Computer Interface (BCI) technology and explores its potential implications for the ALS community. Leading this comprehensive overview is Daniel B. Rubin, M.D., Ph.D., a neurologist and researcher at Massachusetts General Hospital and an Assistant Professor of Neurology at Harvard Medical School. Discover how BCI is transforming lives and […]
Free
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up. |
3 events,
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up. The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join. The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those […] |
4 events,
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
Scribes of Strength: Our ALS Stories When: 11am EST Thursdays Chair: Elin Adcock, Emily Cerbone, and Steve Lyons Mission statement: The Scribes of Strength: Our ALS Stories empowers and embraces all perspectives as we share our stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering a new virtual support series for people living with ALS. The group will feature humor, creative thinking, storytelling, and group discussion to reduce feelings of […]
Free
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join. |
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2 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up. |
5 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' First Wednesday of every month from 12-1 p.m. CST: People who have lost a loved […]
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up. The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join. The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those […]
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Dr. Morrison plans to discuss the following topics: Review of Tofersen for the treatment of SOD1 ALS New data showing that some patients with SOD1 ALS have improved function following treatment with Tofersen. Plasticity in spinal cord, peripheral nerve and muscle that may account for this improvement What does this mean for patients without SOD1 […] |
4 events,
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
Scribes of Strength: Our ALS Stories When: 11am EST Thursdays Chair: Elin Adcock, Emily Cerbone, and Steve Lyons Mission statement: The Scribes of Strength: Our ALS Stories empowers and embraces all perspectives as we share our stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering a new virtual support series for people living with ALS. The group will feature humor, creative thinking, storytelling, and group discussion to reduce feelings of […]
Free
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join. |
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1 event,
The Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and accelerate the development of and access to treatments and cures. Click the link to sign up. |
2 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up. |
5 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Fourth Wednesday of every month from 12-1pm CST: This group supports Veterans living with […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Second Wednesday of every month from 12-1 p.m. CST is for people who are […]
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up. The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join. The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those […] |
5 events,
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
Scribes of Strength: Our ALS Stories When: 11am EST Thursdays Chair: Elin Adcock, Emily Cerbone, and Steve Lyons Mission statement: The Scribes of Strength: Our ALS Stories empowers and embraces all perspectives as we share our stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering a new virtual support series for people living with ALS. The group will feature humor, creative thinking, storytelling, and group discussion to reduce feelings of […]
Free
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join. 
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
Free
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2 events,
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […] Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org |
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4 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS […] Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up.
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Join us for the 2025 I AM ALS Social Hours! Enjoy a fun and relaxed atmosphere where you can connect with members of the IAA community. Once you’ve signed up for one of the Social Hours, you’re automatically registered for all of them, so there’s no need to sign up again each month. We can’t […] |
5 events,
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up.
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support. Third Wednesday of every month from 12-1 p.m. CST: People who are loved ones of […] The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join. The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those […]
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Meeting Details: The speaker will start promptly at 7:00pm ET/4:00pm PT The meeting room will open at 6:30pm ET/3:30pm PT Questions for our Speaker? Submit your questions in the Zoom Chat during the webinar. If you still have questions after the event, please email us at info@everythingals.org |
6 events,
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
Scribes of Strength: Our ALS Stories When: 11am EST Thursdays Chair: Elin Adcock, Emily Cerbone, and Steve Lyons Mission statement: The Scribes of Strength: Our ALS Stories empowers and embraces all perspectives as we share our stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering a new virtual support series for people living with ALS. The group will feature humor, creative thinking, storytelling, and group discussion to reduce feelings of […]
Free
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Title: Making Daily Life Easier: Occupational Therapy Solutions for People Living with ALS Date: Thursday, August 21, 2025, at 12pm CT Link to register: https://us02web.zoom.us/webinar/register/WN_NvIxvs4-TQSR5BwY_maltA About the Program: Join us for an informative session about how occupational therapy can support your daily activities and quality of life while living with ALS. Becca Schroeder, MOT, OTR/L, will explore practical strategies, […]
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join. |
0 events,
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2 events,
The Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and accelerate the development of and access to treatments and cures. Click the link to sign up. An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […] |
2 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up. |
3 events,
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up. The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join. The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those […] |
5 events,
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
Scribes of Strength: Our ALS Stories When: 11am EST Thursdays Chair: Elin Adcock, Emily Cerbone, and Steve Lyons Mission statement: The Scribes of Strength: Our ALS Stories empowers and embraces all perspectives as we share our stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering a new virtual support series for people living with ALS. The group will feature humor, creative thinking, storytelling, and group discussion to reduce feelings of […]
Free
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join.
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
Free
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2 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up. |
5 events,
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' First Wednesday of every month from 12-1 p.m. CST: People who have lost a loved […]
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up. The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join. The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those […]
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Meeting Details: The speaker will start promptly at 7:00pm ET/4:00pm PT The meeting room will open at 6:30pm ET/3:30pm PT Questions for our Speaker? Submit your questions in the Zoom Chat during the webinar. If you still have questions after the event, please email us at info@everythingals.org |
4 events,
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
Scribes of Strength: Our ALS Stories When: 11am EST Thursdays Chair: Elin Adcock, Emily Cerbone, and Steve Lyons Mission statement: The Scribes of Strength: Our ALS Stories empowers and embraces all perspectives as we share our stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering a new virtual support series for people living with ALS. The group will feature humor, creative thinking, storytelling, and group discussion to reduce feelings of […]
Free
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join. |
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