Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community. Moderators: Gethin Thomas - Executive Director, Research | Motor Neurone Disease Australia Claire Magnussen, PhD - Program Manager, CAPTURE ALS, McGill […]
Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Mariah […]
ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and […]
Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at The University of California San Francisco (UCSF). He has authored over 200 scientific articles in the fields of AIDS, cancer and neurological disease since joining […]
Weekly Q&A with guest speaker Michael Elliott, MD, FAAN from Swedish Medical Center in WA
The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in the care of patients with dementia, including C9 carriers. Her lab at UCSF is developing novel CRISPR gene editing approaches for dementia and ALS, starting […]
You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have another disability Much more through the question and answer section Jinsy Andrews, MD, MSc, FAAN: Director of Neuromuscular Clinical Trials at Columbia University in the City […]
Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Shafeeq Ladha (Barrow Neurological Institute) The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS and illustrate what potential participants can expect when enrolling in Regimen E of the Healey […]
About the Program: Caregivers undergo changing dynamics and burnout when caring for a loved one. It’s important for others to maintain a more understanding and loving perspective so that they can cope effectively. Please join us on Thursday, October 6 from 12-1 p.m. (CT) for this month’s ALS Learning Series, “Navigating the Challenges of Caregiving […]
Weekly Q&A with guest speaker Catherine Douthwright, PhD, CCRP of UMass Worcester
October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access. Moderator: Sara Feldman – ALS Hope Foundation Panel: Alicia Gibb – MND New South Wales & […]
We are excited to host EverythingALS Community Event: Telemedicine and You: Building Proactive, Personalized Care for all People with ALS. - Brian Wallach, Founder of Synapticure - Brook Croke, MPH, Certified genetics counselor in the Department of Pediatrics at SIU School of Medicine - Danielle Geraldi Samara , MD , Neurologist - Dr. Eric Anderson […]
