Webinar
Weekly HEALEY ALS Platform Trial Webinar
VirtualSpecial Topic: Regimen C Updates Please join us on Thursday, January 12 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, we will be […]
Why Your Participation in the National ALS Registry Matters
VirtualAbout the Program: Join us for our January ALS Learning series with Dr. Paul Mehta to learn how the National ALS Registry helps advance research. Dr. Mehta will discuss how to join the National ALS Registry, what information they collect and why, and the type of research the registry is conducting. A Q&A session will […]
Pat’s Maps
VirtualYou’ve heard of advocating for ALS, you’ve heard of organizing for ALS, but have you ever heard of…mapping it? That’s right, I said mapping! He has created many maps for his Geospatial Hub, including a map of ALS clinics throughout the US, so people living with and impacted by ALS can easily see where their […]
What Do I Need to Know About Clinical Trials?
VirtualLearn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael Marsden. Panelists include Allison Bulat, Nadia Sethi & Paula Trefiak.
Weekly HEALEY ALS Platform Trial Webinar
VirtualWeekly Q&A with guest speaker Jonathan Katz, MD, Site Investigator at CPMC
Instagram 101
VirtualThey say a picture is worth a thousand words, which means pictures are pretty powerful. Would you like to harness the power of photos and videos to help enhance your advocacy? Then look no further than Instagram! This photo-centered platform can help you add some creativity and depth to telling your story and advocating in […]