NINDS Fundamental Neuroscience Working Group Public Webinar July 27, 2023 | 12:00 - 1:00 PM ET Please click this link to register for the webinar What is the Fundamental Neuroscience Working Group? Find out more here: NANDSC Fundamental Neuroscience Working Group FNWG Public Webinar Agenda (tentative) Introductory Remarks (Walter Koroshetz, 5 min) Committee Charge (Lyn Jakeman, […]
Please join us on Thursday, July 27th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by Dr. Suma Babu of Mass General Hospital to […]
Join me, Kristine Copley, our founder, Ron Hoffman, and tech genius Tom Meadows in a groundbreaking presentation about hidden and undocumented functionality in the Apple OS that can specifically benefit people with ALS. Tom’s childhood friend, Steve, was diagnosed with ALS in 2021. Steve's disease progressed and using his phone became more and more difficult. […]
Learn How ALS TDI is Partnering with Unite Genomics to Expand the ARC Study Led by ALS TDI and Unite Genomics Wednesday, August 9, 2023 | 3:00 - 4:00pm EDT The ALS Research Collaborative (ARC) has been gathering over eight years of comprehensive data from people with ALS, however, the untapped potential of participants' electronic […]
Please join us on Thursday, August 17th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by ALS advocate Gwen […]
About the Program: In this Learning Series webinar, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND, making palliative care more widely accessible. A particular focus will be on bereavement support and family caregiver support. The Les Turner ALS Foundation is proud to offer this […]
Why do some asymptomatic individuals consider ALS genetic testing? Why do some symptomatic individuals consider it? The decision is a personal one, and there are professionals to help us through the process: ALS neurologists and ALS genetic counselors. It can also be helpful to hear from individuals who have reached their own decisions. Join the […]
