On February 4th, we invite you to join special guest and ALS research advocate Ben Stiller, foremost ALS clinicians, leading researchers, and dedicated patient advocates to learn how Jaci and Alex Hermstad inspired the team effort that led to the development of jacifusen - a novel gene therapy for ALS. Those familiar with rare disease know […]
Join us for a HEALEY ALS Platform Trial Webinar, "CNM-Au8, Mechanism of Action and Science" with representatives from Clene Nanomedicine, who will discuss CNM-Au8, which is Regimen C in the HEALEY ALS Platform Trial. REGISTER HERE
At this event, you will hear from the BrainGate team about the research and opportunities underway related to using brain-computer interface technology to restore communication and mobility.
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Join us for a HEALEY ALS Platform Trial Webinar, "Verdiperstat, Mechanism of Action and Science" with representatives from Biohaven, who will discuss Verdiperstat, which is Regimen B in the HEALEY ALS Platform Trial. REGISTER HERE
Become an ALS Research Ambassador Join our first-ever 2021 Chicago Virtual NEALS ALS Clinical Research Learning Institute (CRLI) online on February 20-21! The ALS CRLI is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Certification as an ALS […]
Mitsubishi Tanabe Pharma America will be conducting an educational webinar designed to answer some of the most commonly asked questions about RADICAVA® (edaravone). It is titled Understanding the Insurance Process for RADICAVA® (edaravone) and will be presented on February 22, 2021, at 3pm ET by James T. Kenney, a former president of the Academy of […]
BrainGate: Brain-Computer Interfaces Toward the Maintenance and Restoration of Communication and Mobility Leigh R. Hochberg, M.D., Ph.D. Director, Center for Neurotechnology and Neurorecovery, Department of Neurology, Massachusetts General Hospital, Harvard Medical School Professor of Engineering, Brown University Director, VA RR&D Center for Neurorestoration and Neurotechnology, Providence VAMC Wednesday, February 24, 2021 12:00 […]
EverythingALS's next webinar on Feb 24th 4pm PDT featuring Dr. Paul Alan Cox, Executive Director of the Brain Chemistry Labs, which focuses on discovering cures for ALS and other neurodegenerative diseases with two drugs in FDA clinical trials. Dr. Cox is featured in "Toxic Puzzle" a medical and environmental detective story about the worldwide search […]
Coping with the Loss of a Loved One During COVID-19, with Nicole Sammartino, MS, & Easton Stevenson, LCSW Coping with the loss of a loved one is hard. It’s especially challenging during a global pandemic. Over the past 44 years, we have made it a priority at the Les Turner ALS Foundation to honor people […]
Join us for a HEALEY ALS Platform Trial Webinar, "Zilucoplan, Mechanism of Action and Science" with representatives from RA Pharma, who will discuss Zilucoplan, which is Regimen A in the HEALEY ALS Platform Trial. REGISTER HERE
The Penn FTD Center will be hosting a virtual conference, Fighting for the Future: Education and Support for Familial FTD/ALS, on Saturday, February 27, 2021 from 9AM-12PM EST. The team at the Penn FTD Center understands that ALS and FTD can impact the entire family even when just one person is diagnosed. However, we also […]
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05