Please join us for an update on the Platform Trial from Dr. Cudkowicz and Dr. Paganoni with remarks from Jen DiMartino of ALS One. Click here to register!
Please connect with us for a time of collaboration and learning! The next EverythingALS Patient Community Zoom Meeting will occur Wednesday, December 2nd at 4:00 pm PST. We encourage you to participate in this call hosted by Dr. Robert Bowser, Ph.D. to discuss his pioneering research into the discovery and validation of biomarkers for ALS. BioMarkers in […]
When targeting rare genetic diseases for clinical trials or research, patient engagement is critical. In this webinar, join a panel of experts who will address proven and emerging ways to empower a diverse group of patients as critical stakeholders in clinical trials, leading to improved participation and more meaningful outcomes.
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Clinical Trials 101 featuring Benjamin Joslin, CCRC, Clinical Research Project Manager, Northwestern University Feinberg School of Medicine Tuesday, December 8 12pm CST Please join us for our second ALS Learning Series webinar, Clinical Trials 101, featuring Benjamin Joslin, CCRC, clinical research project manager with Northwestern University’s Feinberg School of Medicine on Tuesday, December 8, at 12pm […]
Home Digital Outcome Measures Webinar hosted by NEALS, MGH, and Barrow Neurological Institute. Tuesday, December 8th from 3:00pm – 5:00pm ET. Click here to RSVP: https://www.surveymonkey.com/r/?sm=A1loKNOj9Xf2Dcw8Eg0HHA_3D_3D
The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND. Each year, the Symposium attracts over 1,000 delegates, representing the energy and dynamism […]
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Results of the REFALS Study Merit Cudkowicz, MD, MSc Sean M. Healey & AMG Center for ALS at Mass General Hospital Tuesday, December 15, 2020 12:00 - 1:00 PM EST Dr. Merit Cudkowicz will review the results of the REFALS trial evaluating the effect of oral levosimendan (ODM-109) on respiratory function in people with ALS. REGISTER NOW
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
