Webinar

Brent R. Stockwell, Ph.D. is a professor in the Departments of Biological Science and Chemistry, member of the Motor Neuron Center, Principal Investigator of the Stockwell Laboratory, and Director of the Chemical Probe Synthesis Facility at Columbia University. His research involves the discovery of small molecules that can be used to understand and treat cancer and […]

We invite you to join us on Tuesday, November 10 from 5 PM - 6 PM PDT for our next ASK ME educational webinar entitled, "Caring for the Caregiver" featuring Kathryn Sexson, PhD, APRN, FNP, Associate Director of Education, Family Caregiving Institute, UC Davis Health, Betty Irene Moore School of Nursing. If interested, please register here.

Join Jennith Bernstein, PT, DPT, ATP/SMS and Shawn Sexton, Person living with ALS, as they discuss the benefits of seating and mobility features supported by advancing technology. Register Now!

This talk will cover some genetics basics as well as the inheritance patterns of both sporadic and familial ALS. We will review known familial ALS genes and the process for genetic testing for both symptomatic and pre-symptomatic FALS patients. We’ll also discuss the logistics of testing within a family, as well as the possible results […]

Presenter: Richard Bedlack, MD, PhD, Duke ALS Clinic The gut microbiome is the family of organisms that live inside our GI tracts. It is very clear that the gut microbiome plays a role in gastrointestinal diseases. Recently, evidence is emerging that the gut microbiome may play a role in driving ALS progression. Here we will review […]

Please connect with us for a time of collaboration and learning! The next EverythingALS Patient Community Zoom Meeting will occur Wednesday, November 18th at 4:00 pm PST. We encourage you to participate in this call dedicated to food and family during this holiday season. Supporting the ALS Family with Dr. Anne-Marie Wills MD, MPh from Mass General/Harvard […]

Please join us for an update on the Platform Trial from Dr. Cudkowicz and Dr. Paganoni with remarks from Jen DiMartino of ALS One. Click here to register!

Please connect with us for a time of collaboration and learning! The next EverythingALS Patient Community Zoom Meeting will occur Wednesday, December 2nd at 4:00 pm PST. We encourage you to participate in this call hosted by Dr. Robert Bowser, Ph.D. to discuss his pioneering research into the discovery and validation of biomarkers for ALS. BioMarkers in […]

When targeting rare genetic diseases for clinical trials or research, patient engagement is critical. In this webinar, join a panel of experts who will address proven and emerging ways to empower a diverse group of patients as critical stakeholders in clinical trials, leading to improved participation and more meaningful outcomes.