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Symptomatic and Pre-Symptomatic Biomarkers for ALS Therapy Development

Virtual

EverythingALS is excited for our next speaker on September 8th 4pm PT | 7pm ET! Dr. Michael Benatar from University of Miami will discuss Symptomatic & Pre-symptomatic Biomarkers for ALS Therapy Development. After the presentation, we open up to audience Q&A to answer all your questions, followed by an open forum where you can connect […]

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

Clenbuterol for ALS: Findings From an Open Label Trial

Virtual

EverythingALS is excited for our next speaker on September 22nd 4pm PT | 7pm ET! Dr. Richard Bedlack is currently a Professor of Neurology at Duke University, and Director of the Duke ALS Clinic.  He will be discussing the findings from the Open Label Trial:  Clenbuterol for ALS. After the presentation, we open up to […]

An Update on AMX0035 and Design of the Phase 3 PHOENIX Study

Virtual

Please join Dr. Merit Cudkowicz and Dr. Sabrina Paganoni for a conversation about recent updates on AMX0035 (sodium phenylbutyrate/taurursodiol) and to review details of the Phase 3 PHOENIX Study (Study A35-004). Register here.

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology

Virtual

This webinar will identify solutions for communication and use of smart phones, tablets, and computers as ALS can affect your speech and ability to use these devices. This course will focus on making communication as easy as possible throughout this difficult journey, using cutting-edge technology and collaboration with each person’s team including their family, caregivers, therapists, […]

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

A new CIRM funded clinical trial transplanting stem cells releasing GDNF into the motor cortex of patients with ALS

Virtual

EverythingALS is excited for our next speaker on October 6th 4pm PT | 7pm ET! Clive Svendsen, Ph.D., executive director of Cedars-Sinai’s Board of Governors Regenerative Medicine Institute,  has a long-standing interest in ALS and he was the Sponsor of the first-ever clinical trial delivering stem cells and GDNF to patients that was recently completed […]

ALS Learning Series: Family Planning and ALS

Virtual

The decision to have genetic testing for a familial ALS gene is important and may have implications for those interested in starting a family. This talk will review family planning options available to individuals to reduce the risk of passing on a genetic disorder. We'll review what is involved in each option as well as […]

An Intimate Talk with the Ellen McConnell Blakeman ALS Research Fellow

Virtual

Join A Long Swim on Monday, October 18, 2021, at 7:00 pm CST for an intimate talk with the recipient of the Ellen McConnell Blakeman ALS Research Fellowship at Northwestern University’s Feinberg School of Medicine, Mukesh Gautam, Ph.D. This event is completely virtual, open to the public, free to attend, and will be held on […]

11th Annual Les Turner Symposium on ALS

Save the date for the 11th Annual Les Turner Symposium on ALS on Monday, November 8, 2021. The Symposium features presentations from leading ALS clinicians and researchers, including members of our Lois Insolia ALS Clinic at our Les Turner ALS Center at Northwestern Medicine.