Join this Hospice and Palliative Care webinar to learn how to talk with your loved ones about ALS end-of-life care, what to say, and most importantly, when to say it. These conversations can lower anxiety, reduce apprehension, and improve quality of life. This online webinar is right for you even if end-of-life care remains a […]
Please join us to learn about COURAGE-ALS, a global phase 3 trial of reldesemtiv currently enrolling participants.
During this webinar, you will learn how to use the new My ALS Decision Tool™. This groundbreaking decision tool is a web-based, interactive series of questions and considerations which can help you take control of your ALS care. My ALS Decision Tool™ adds a component of dignity, autonomy and self-determination that is vital to overall […]
During this webinar, the presenters will be discussing symptoms of mobility weakness and how ALS affects mobility. You will learn about a variety of mobility aids to assist you in your daily life and learn what information is important to know when modifying your home for use of a power wheelchair. You will learn about […]
Please join us on February 24th for a webinar to learn about a new Phase 2a trial of Oral LAM-002A capsules for individuals with C9ORF72 positive ALS.
Zoom Meeting: https://us02web.zoom.us/j/9696329782 Password: 0316 We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are excited to host EverythingALS Community Event: We Need To Do Better: Strategies to Identify and Validate EFFECTIVE ALS Therapies and Accelerate Translation Dr. Lyle W. […]
Making Activities of Daily Life Easier in ALS - Thursday, March 17, 2022 from Noon to 1:00pm CT About the Program: This webinar will focus on how ALS may impact your daily routines and how an occupational therapist can offer tips to make daily living a little easier. You will learn about devices for getting through […]
The purpose of this webinar is to provide an overview of the ATLAS study, the investigational drug, eligibility criteria, and what study participation involves. This webinar will also share resources for interested individuals to learn more about study participation. This webinar will be held live on March 17, 2022. Michael Benatar, MD, PhD Professor of […]
Please join us on Thursday, March 17th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to the study team at the University of Kentucky. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions […]
Please join us for a conversation about Expanded Access Protocols (EAPs) in ALS, including recent progress in setting EAPs up alongside clinical trials. This webinar will be moderated by Dr. Jinsy Andrews and will feature Dr. Merit Cudkowicz, Dr. Sabrina Paganoni, Philip Green, and Sandy Morris.
Guest speaker Jaimin Shah, MD of the Mayo Clinic Jacksonville Jaimin Shah, M.D. is a physician in the Department of Neurology at Mayo Clinic in Jacksonville, Florida. His clinical interests focus on ALS and inflammatory myopathy. Dr. Shah is an award-winning teacher in the field of neurology, is a member of the American Academy of Neurology […]
We are excited to host EverythingALS Community Event: Antisense Oligonucleotide Therapy for ALS. We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, March 30, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central […]
