EverythingALS is excited for our next speaker on September 22nd 4pm PT | 7pm ET! Dr. Richard Bedlack is currently a Professor of Neurology at Duke University, and Director of the Duke ALS Clinic. He will be discussing the findings from the Open Label Trial: Clenbuterol for ALS. After the presentation, we open up to […]
Please join Dr. Merit Cudkowicz and Dr. Sabrina Paganoni for a conversation about recent updates on AMX0035 (sodium phenylbutyrate/taurursodiol) and to review details of the Phase 3 PHOENIX Study (Study A35-004). Register here.
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
This webinar will identify solutions for communication and use of smart phones, tablets, and computers as ALS can affect your speech and ability to use these devices. This course will focus on making communication as easy as possible throughout this difficult journey, using cutting-edge technology and collaboration with each person’s team including their family, caregivers, therapists, […]
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
EverythingALS is excited for our next speaker on October 6th 4pm PT | 7pm ET! Clive Svendsen, Ph.D., executive director of Cedars-Sinai’s Board of Governors Regenerative Medicine Institute, has a long-standing interest in ALS and he was the Sponsor of the first-ever clinical trial delivering stem cells and GDNF to patients that was recently completed […]
The decision to have genetic testing for a familial ALS gene is important and may have implications for those interested in starting a family. This talk will review family planning options available to individuals to reduce the risk of passing on a genetic disorder. We'll review what is involved in each option as well as […]
Join A Long Swim on Monday, October 18, 2021, at 7:00 pm CST for an intimate talk with the recipient of the Ellen McConnell Blakeman ALS Research Fellowship at Northwestern University’s Feinberg School of Medicine, Mukesh Gautam, Ph.D. This event is completely virtual, open to the public, free to attend, and will be held on […]
Save the date for the 11th Annual Les Turner Symposium on ALS on Monday, November 8, 2021. The Symposium features presentations from leading ALS clinicians and researchers, including members of our Lois Insolia ALS Clinic at our Les Turner ALS Center at Northwestern Medicine.
Join this Hospice and Palliative Care webinar to learn how to talk with your loved ones about ALS end-of-life care, what to say, and most importantly, when to say it. These conversations can lower anxiety, reduce apprehension, and improve quality of life. This online webinar is right for you even if end-of-life care remains a […]
Please join us to learn about COURAGE-ALS, a global phase 3 trial of reldesemtiv currently enrolling participants.
During this webinar, you will learn how to use the new My ALS Decision Tool™. This groundbreaking decision tool is a web-based, interactive series of questions and considerations which can help you take control of your ALS care. My ALS Decision Tool™ adds a component of dignity, autonomy and self-determination that is vital to overall […]