Education

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

EverythingALS is excited for our next speaker on October 6th 4pm PT | 7pm ET! Clive Svendsen, Ph.D., executive director of Cedars-Sinai’s Board of Governors Regenerative Medicine Institute,  has a long-standing interest in ALS and he was the Sponsor of the first-ever clinical trial delivering stem cells and GDNF to patients that was recently completed […]

The decision to have genetic testing for a familial ALS gene is important and may have implications for those interested in starting a family. This talk will review family planning options available to individuals to reduce the risk of passing on a genetic disorder. We'll review what is involved in each option as well as […]

Join A Long Swim on Monday, October 18, 2021, at 7:00 pm CST for an intimate talk with the recipient of the Ellen McConnell Blakeman ALS Research Fellowship at Northwestern University’s Feinberg School of Medicine, Mukesh Gautam, Ph.D. This event is completely virtual, open to the public, free to attend, and will be held on […]

Join this Hospice and Palliative Care webinar to learn how to talk with your loved ones about ALS end-of-life care, what to say, and most importantly, when to say it. These conversations can lower anxiety, reduce apprehension, and improve quality of life. This online webinar is right for you even if end-of-life care remains a […]

Please join us to learn about COURAGE-ALS, a global phase 3 trial of reldesemtiv currently enrolling participants.

During this webinar, you will learn how to use the new My ALS Decision Tool™. This groundbreaking decision tool is a web-based, interactive series of questions and considerations which can help you take control of your ALS care. My ALS Decision Tool™ adds a component of dignity, autonomy and self-determination that is vital to overall […]

During this webinar, the presenters will be discussing symptoms of mobility weakness and how ALS affects mobility. You will learn about a variety of mobility aids to assist you in your daily life and learn what information is important to know when modifying your home for use of a power wheelchair. You will learn about […]

Please join us on February 24th for a webinar to learn about a new Phase 2a trial of Oral LAM-002A capsules for individuals with C9ORF72 positive ALS.

Zoom Meeting: https://us02web.zoom.us/j/9696329782 Password: 0316 We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are excited to host EverythingALS Community Event:  We Need To Do Better: Strategies to Identify and Validate EFFECTIVE ALS Therapies and Accelerate Translation Dr. Lyle W. […]