About the program: People living with ALS must make many complex decisions regarding their future care needs, which can be stressful and overwhelming. In our upcoming ALS Learning Series, with Dr. Anne Hogden, she’ll discuss how she and other researchers have collaborated with the ALS community, their family members, and their ALS care teams to develop tools […]
In this educational webinar, Dr. Richard Bedlack of ALSUntangled will review what he considers to be the most promising alternative and off-label ALS treatments currently. These products, which include vitamins, supplements, and medications approved for other conditions, all have plausible mechanisms and at least one human trial demonstrating a statistically and/or clinically meaningful benefit. Known […]
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Join us for this inaugural webinar, which marks the beginning of our four-part NEALS Community Education series on advances in respiratory care in ALS. This series, organized by the NEALS Respiratory Care and Ventilation Committee, will focus on respiratory assessment innovations and clinical implementations.
Event description: Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, fatal neurological disease. Individuals affected by ALS include those living with ALS, their caregivers and families, at-risk ALS genetic carriers, and others. Currently no treatments stop or reverse the disease, although various FDA-approved formulations may extend life by several months. Congress called on […]
About the program: What can you do to control your phone or tablet, when tapping on the screen becomes difficult? June's ALS Learning Series will describe in detail how to control your mobile devices totally hands-free with just your voice. After seeing how powerful Voice Control is on iPhones and iPads, and Voice Access is on […]
June 21, 2024 – 10:00 AM Eastern Time (US and Canada) On June 21, Global ALS/MND Awareness Day, we’ll be holding a public webinar, moderated by our Chair, Calaneet Balas, to explore the impact of the Ice Bucket Challenge, and how it raised the profile of the ALS/MND and led to significant advancements in care, […]
Tuesday, June 25th, 2024 4:30 - 5:30 PM ET Genetic counselors Lauren Lichten and Laynie Dratch will describe the genetics of ALS, why genetic counseling and testing may be of value to a family impacted by ALS, and what to expect from the process. They will be joined by genetic counselor Jennifer Roggenbuck and Dr. […]
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
As part of our community webinar series, we will dedicate one Thursday each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs). Please join us on Thursday, July 11th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session featuring guest speakers from our EAP Patient Advisory Committee.
