The various pathways of preapproval access are confusing, and often misunderstood. CUPA will help bring clarity to this complex topic. About this event Most people access unapproved medical products through clinical trials, but what happens when patients can’t get into a clinical trial, or there is no trial focused on treating their disease? Non-trial […]
Register to Attend a Community Discussion on ALS Research and Trials Next Tuesday, May 3rd, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for a new virtual discussion series – ALS TDI Community Conversations. Through these conversations, Nadia will provide information on research and clinical trials while […]
Please join us on Thursday, May 5th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Peter Foss, president of ALS Finding a Cure. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and […]
A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD (Amyotrophic Lateral Sclerosis and/or Frontotemporal Dementia) Merit Cudkowicz, MD, MSc Sean M. Healey & AMG Center for ALS at Mass General Hospital Friday, May 6, 2022 10:30 - 11:30 AM EDT The purpose of this webinar is to provide an overview of a new […]
About the Event Michael Snyder, Ph.D. Title: Moving from a few genes to a genetic architecture for ALS and the insights it provides Michael Snyder, Ph.D., Professor in Genetics Stanford University School of Medicine Bio: 977 B.A, Chemistry and Biology, University of Rochester, NY 1978-1982 Ph.D. California Institute of Technology, CA Advisor: Dr. Norman Davidson […]
About the Program: This webinar will guide people living with ALS and their loved ones through easy-to-understand actionable steps for securing a financial future and optimizing health care. A diagnosis of ALS makes planning for the future more important than ever. These discussions are not easy, but taking the time to gather information and think […]
Please join us on Thursday, May 19th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Dr. Nadia Sethi, a member of our Patient Advisory Committee. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform […]
In recognition of ALS Awareness Month, the Dotdash Meredith DEI Team is partnering with Verywell Health, the ALS Association and Everything ALS to discuss the challenges of ALS with a focus on underrepresented communities. Join us on Tuesday, May 24, 3 p.m. ET. Understanding ALS-Link-FINAL Dr. Jessica Shepherd Chief Medical Officer @Verywell Health Moderator Deb Fabricatore […]
Register to Attend a Community Discussion on ALS Research and Trials On Tuesday, May 24th, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for a new virtual discussion series – ALS TDI Community Conversations. Through these conversations, Nadia will provide information on research and clinical trials while […]
About the Event In this webinar our speaker, MATTHEW S. MILLER PhD, Associate Professor, Biochemistry & Biomedical Sciences talks about Immunity, Virus, and the Role of Inflammation in ALS. We look forward to seeing you there! To Register: EverythingALS.org/research Questions: Info@EverythingALS.org RSVP
