Education
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, June 9th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Honora […]
ALS Town Hall: Meet Your ALS Orgs
VirtualYou are invited to attend our first event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and the NEALS Patient Education & Advocacy Committee on this new series – creating a platform for the ALS community to meet some of the key people […]
ALS TDI Community Conversations
VirtualJoin the Conversation on June 14 Overview of research at ALS TDI and current clinical trials. Tuesday, June 14, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion […]
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, June 16th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speaker Bruce […]
Healey ALS Platform Trial Regimen E: A Participant’s Guide
VirtualThe ALS Association/Northeast ALS Consortium Educational Webinar Healey ALS Platform Trial Regimen E: A Participant's Guide Friday, June 17, 2022 5:00 - 6:00 PM EDT The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS and illustrate what potential participants can expect when enrolling in Regimen […]
An Overview of Medicare for People Living with ALS
VirtualAbout the Program Many people living with ALS qualify for Medicare to provide their health insurance after they are no longer working full-time. This presentation will examine Medicare eligibility, enrollment, coverage, costs, assistance paying for costs, and considerations when choosing between traditional Medicare and a private Medicare advantage plan. Questions, answers and discussion will follow […]
HEALEY ALS Platform Trial Q&A Webinar
VirtualWeekly Q&A with guest speaker Jackie Whitesell, MD of Saint Alphonsus Medical Center in Idaho
No Ordinary Campaign (Film and Discussion)
The Aspen Institute 1000 N 3rd St, Aspen, United StatesPresented by Chan Zuckerberg Initiative at the 2022 Aspen Ideas Festival At just 37 years old, Brian and Sandra, who met and fell in love on the 2008 Obama campaign, found their world upended by Brian’s diagnosis of ALS and the possibility that he may have only six months to live. This is a story […]
Why patient centricity is no longer optional in ALS clinical trials
VirtualThis webinar will cover the vital need for patient involvement in ALS clinical trials in order to improve recruitment, retention and data quality, as well as readiness to adhere to impending regulatory changes. Join Paul Wicks, Ph.D., a neuropsychologist, independent consultant and Sano Genetics investor and Cathy Collet, a world-leading ALS advocate, for an important […]
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, June 30th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speaker Gale […]