About the Program: Have you ever thought about Voice or Message Banking, but don’t know where to start? Voice and message banking for people living with ALS can be an emotional, overwhelming, and seemingly complicated task to navigate. However, it doesn’t have to be. Anne Marie will discuss the differences between voice banking, message banking, […]
Featured Site: Vanderbilt University Medical Center Please join us on Thursday, August 18th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature […]
Join the Conversation on August 23 Overview of research at ALS TDI and current clinical trials. Tuesday, August 23, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion […]
On June 23, 2022, the FDA unveiled its Action Plan for Rare Neurodegenerative Diseases including Amyotrophic Lateral Sclerosis (ALS) – a five-year strategy for improving and extending the lives of people living with rare neurodegenerative diseases by advancing the development of safe and effective medical products and facilitating patient access to novel treatments. We'd like to cordially […]
Please join us on Thursday, August 25th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to Site Investigator […]
About the Event Homes are where we all live, work, play, and thrive. At Prev.ai, we believe that homes should grow with us, and just as our lives change, so should our homes. We are a 100% virtual fall prevention program harnessing computer vision and AI, linked to a network of trained clinicians, to provide […]
Please join us on Thursday, September 1st at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. James Berry, MD, MPH will present this week’s updates on the HEALEY ALS Platform Trial, discuss biomarkers, and answer questions from the audience. James Berry, MD, MPH Dr. Berry is the Director of […]
Using induced pluripotent stem cells as a platform for understanding ALS disease mechanisms and therapeutic development Dr. Maragakis is the Medical Director of the Johns Hopkins ALS Clinical Trials Unit and Director of the ALS Center for Cell Therapy and Regeneration Research and Professor of Neurology at Johns Hopkins University. The Center for ALS Specialty […]
About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off in your home, have become much easier. Team Gleason’s mission is to have people living with ALS remain as independent as possible no matter where […]
Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to […]
Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community. Moderators: Gethin Thomas - Executive Director, Research | Motor Neurone Disease Australia Claire Magnussen, PhD - Program Manager, CAPTURE ALS, McGill […]