Please join us on Thursday, October 20th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to Site Investigator […]
Join us in learning more about genetic counselling in ALS/MND. Genetic counsellor Ashley Crook will be providing us with an overview of genetic counselling, different types of genetic testing, and genetic counselling considerations before testing.
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series, […]
ALS Strategic Planning Workshop We would like to remind and encourage you to register for the virtual ALS Strategic Planning Workshop occurring this week on Wednesday October 26th and Thursday October 27th. A draft strategic plan of the highest priorities for research that will lead the way to the discovery of effective interventions for the diagnosis, treatment, management, prevention, or cure of […]
About the Event Dr. Paganoni is an Associate Professor at Harvard Medical School and works as a physician scientist at the Healey Center for ALS at Massachusetts General Hospital and at Spaulding Rehabilitation Hospital.Her research focuses on clinical trials and therapy development for ALS. She has served as PI of several ALS clinical trials and […]
21st Annual NEALS Meeting November 1 - 3, 2022 The 2022 NEALS Meeting will be held in November in a hybrid format – both virtually and at the Opal Sands Resort in Clearwater Beach, Florida! 2022 Abstract Submission Abstract submission for the 2022 Annual NEALS Meeting is now closed. Two abstract awards will be given […]
This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed. Moderated by Gethin Thomas, Executive Director, Research - MND Australia, hear from AB Science, Amylyx, Biogen, Clene Nanomedicine, Ferrer, […]
ALS brings with it a lot of uncertainty and loss emotionally and physically. It can feel like your body is failing you, and lead to mental and emotional struggles related to what it means to live with ALS, and how to find meaning while living with it. Join us for a conversation on November 8th […]
About the Event Dr. Heiman-Patterson is the Director of the Center for Neurodegenerative Disorders and a Professor in the Department of Neurology at the Lewis Katz School of Medicine at Temple University. She directs the MDA/ALS Center of Hope, including the clinical and laboratory research programs. Her career has always been dedicated to research in neuromuscular […]
Speakers: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Nazem Atassi (Sanofi) The webinar discussion will include the mechanism of action of RIPK1 inhibition, efficacy in animal models, results from Phase 1 first in human studies, and Phase 2 study design and update on enrollment.
