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Les Turner ALS Foundation ALS Learning Series: Clinical Trials 101

Virtual

Clinical Trials 101 featuring Benjamin Joslin, CCRC, Clinical Research Project Manager, Northwestern University Feinberg School of Medicine Tuesday, December 8 12pm CST Please join us for our second ALS Learning Series webinar, Clinical Trials 101, featuring Benjamin Joslin, CCRC, clinical research project manager with Northwestern University’s Feinberg School of Medicine on Tuesday, December 8, at 12pm […]

Webinar: Home Digital Outcome Measures

Virtual

Home Digital Outcome Measures Webinar hosted by NEALS, MGH, and Barrow Neurological Institute. Tuesday, December 8th from 3:00pm – 5:00pm ET. Click here to RSVP: https://www.surveymonkey.com/r/?sm=A1loKNOj9Xf2Dcw8Eg0HHA_3D_3D

ALS MND Symposium (Virtual)

Virtual

The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND. Each year, the Symposium attracts over 1,000 delegates, representing the energy and dynamism […]

45British Pounds

Results of the REFALS Study

Virtual

Results of the REFALS Study Merit Cudkowicz, MD, MSc   Sean M. Healey & AMG Center for ALS at Mass General Hospital Tuesday, December 15, 2020     12:00 - 1:00 PM EST Dr. Merit Cudkowicz will review the results of the REFALS trial evaluating the effect of oral levosimendan (ODM-109) on respiratory function in people with ALS. REGISTER NOW

HEALEY ALS Platform Trial Q&A

Virtual

Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05

Making an Impact on ALS Advocacy in Your Community

Virtual

Join our upcoming Virtual Event: Making an Impact on ALS Advocacy in Your Community, on Wednesday, January 13, 2021, at 1:30 p.m. (Pacific). Request an invitation and RSVP here.

COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community

Virtual

The National Organization for Rare Disorders (NORD), along with The ALS Association, Cystic Fibrosis Foundation and Muscular Dystrophy Association, is pleased to host a special webinar with leaders from the US Food and Drug Administration (FDA) and the Centers for Disease Control (CDC) to discuss the COVID-19 vaccines with the rare disease community. FDA recently […]