This talk will cover some genetics basics as well as the inheritance patterns of both sporadic and familial ALS. We will review known familial ALS genes and the process for genetic testing for both symptomatic and pre-symptomatic FALS patients. We’ll also discuss the logistics of testing within a family, as well as the possible results […]
Presenter: Richard Bedlack, MD, PhD, Duke ALS Clinic The gut microbiome is the family of organisms that live inside our GI tracts. It is very clear that the gut microbiome plays a role in gastrointestinal diseases. Recently, evidence is emerging that the gut microbiome may play a role in driving ALS progression. Here we will review […]
Please connect with us for a time of collaboration and learning! The next EverythingALS Patient Community Zoom Meeting will occur Wednesday, November 18th at 4:00 pm PST. We encourage you to participate in this call dedicated to food and family during this holiday season. Supporting the ALS Family with Dr. Anne-Marie Wills MD, MPh from Mass General/Harvard […]
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Please join us for an update on the Platform Trial from Dr. Cudkowicz and Dr. Paganoni with remarks from Jen DiMartino of ALS One. Click here to register!
Please connect with us for a time of collaboration and learning! The next EverythingALS Patient Community Zoom Meeting will occur Wednesday, December 2nd at 4:00 pm PST. We encourage you to participate in this call hosted by Dr. Robert Bowser, Ph.D. to discuss his pioneering research into the discovery and validation of biomarkers for ALS. BioMarkers in […]
When targeting rare genetic diseases for clinical trials or research, patient engagement is critical. In this webinar, join a panel of experts who will address proven and emerging ways to empower a diverse group of patients as critical stakeholders in clinical trials, leading to improved participation and more meaningful outcomes.
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
In an effort to keep our community safe, we have decided to make the 2020 ALS TDI Summit a virtual event. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective treatments for ALS. Led […]
Clinical Trials 101 featuring Benjamin Joslin, CCRC, Clinical Research Project Manager, Northwestern University Feinberg School of Medicine Tuesday, December 8 12pm CST Please join us for our second ALS Learning Series webinar, Clinical Trials 101, featuring Benjamin Joslin, CCRC, clinical research project manager with Northwestern University’s Feinberg School of Medicine on Tuesday, December 8, at 12pm […]