Expanded Access to Investigational Drugs Friday, January 15, 2021 4:00 - 5:00 PM EST Join us for a webinar on Expanded Access Programs (EAPs). In EAPs people with ALS who are not eligible for clinical trials are provided the study medication on a compassionate use basis. Our panelists will discuss the benefits and challenges surrounding EAPs […]
Join us for a HEALEY ALS Platform Trial Webinar, "Pridopidine, Mechanism of Action and Science" with representatives from Prilenia, who will discuss Pridopidine, which is Regimen D in the HEALEY ALS Platform Trial. REGISTER HERE
ASK ME: ALS Research and Care in 2021 Please save the date and join us with your coffee and breakfast on a Saturday morning! This informative event will feature leading ALS researchers and physicians who will explain recent research advancements, answer your important questions, and will give a preview of what to expect in the […]
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
My ALS Communication Passport to Quality Care is a tool for individuals living with ALS and their families. The 12-page Passport document, which is available in hard copy and online, helps nursing, medical staff and caregivers better understand the care needs and preferences of people living with ALS. For the person diagnosed with ALS, this […]
On February 4th, we invite you to join special guest and ALS research advocate Ben Stiller, foremost ALS clinicians, leading researchers, and dedicated patient advocates to learn how Jaci and Alex Hermstad inspired the team effort that led to the development of jacifusen - a novel gene therapy for ALS. Those familiar with rare disease know […]
Join us for a HEALEY ALS Platform Trial Webinar, "CNM-Au8, Mechanism of Action and Science" with representatives from Clene Nanomedicine, who will discuss CNM-Au8, which is Regimen C in the HEALEY ALS Platform Trial. REGISTER HERE
At this event, you will hear from the BrainGate team about the research and opportunities underway related to using brain-computer interface technology to restore communication and mobility.
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Join us for a HEALEY ALS Platform Trial Webinar, "Verdiperstat, Mechanism of Action and Science" with representatives from Biohaven, who will discuss Verdiperstat, which is Regimen B in the HEALEY ALS Platform Trial. REGISTER HERE
Become an ALS Research Ambassador Join our first-ever 2021 Chicago Virtual NEALS ALS Clinical Research Learning Institute (CRLI) online on February 20-21! The ALS CRLI is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Certification as an ALS […]
Mitsubishi Tanabe Pharma America will be conducting an educational webinar designed to answer some of the most commonly asked questions about RADICAVA® (edaravone). It is titled Understanding the Insurance Process for RADICAVA® (edaravone) and will be presented on February 22, 2021, at 3pm ET by James T. Kenney, a former president of the Academy of […]