Home Digital Outcome Measures Webinar hosted by NEALS, MGH, and Barrow Neurological Institute. Tuesday, December 8th from 3:00pm – 5:00pm ET. Click here to RSVP: https://www.surveymonkey.com/r/?sm=A1loKNOj9Xf2Dcw8Eg0HHA_3D_3D
The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND. Each year, the Symposium attracts over 1,000 delegates, representing the energy and dynamism […]
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Results of the REFALS Study Merit Cudkowicz, MD, MSc Sean M. Healey & AMG Center for ALS at Mass General Hospital Tuesday, December 15, 2020 12:00 - 1:00 PM EST Dr. Merit Cudkowicz will review the results of the REFALS trial evaluating the effect of oral levosimendan (ODM-109) on respiratory function in people with ALS. REGISTER NOW
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Join our upcoming Virtual Event: Making an Impact on ALS Advocacy in Your Community, on Wednesday, January 13, 2021, at 1:30 p.m. (Pacific). Request an invitation and RSVP here.
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
The National Organization for Rare Disorders (NORD), along with The ALS Association, Cystic Fibrosis Foundation and Muscular Dystrophy Association, is pleased to host a special webinar with leaders from the US Food and Drug Administration (FDA) and the Centers for Disease Control (CDC) to discuss the COVID-19 vaccines with the rare disease community. FDA recently […]
Expanded Access to Investigational Drugs Friday, January 15, 2021 4:00 - 5:00 PM EST Join us for a webinar on Expanded Access Programs (EAPs). In EAPs people with ALS who are not eligible for clinical trials are provided the study medication on a compassionate use basis. Our panelists will discuss the benefits and challenges surrounding EAPs […]