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Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, April 29th at 5:00pm EST  for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD will present this week’s updates on the HEALEY ALS Platform Trial with guest speaker Eduardo Locatelli, MD, MPH, from Holy Cross Hospital and answer questions from the audience. Click here to register! If you have […]

Maximizing Repositories to Accelerate ALS Research: Biofluids, Tissues, Cells and Data

ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS Biorepository is housed at the Healey Center for ALS at Mass General Hospital and Barrow Neurological Institute and overseen by the NEALS Biorepository Committee. Samples and data […]

ALS Drug Development Webinar Series Part 3: Ethical Considerations

Virtual

Join us for the third installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance […]

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursdays at 5:00pm EST  for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu

Event Series MDA Engage ALS Virtual Symposium

MDA Engage ALS Virtual Symposium

Virtual

Join us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living,  ALS research updates, drug development roundtable discussion,  and much more. There is no cost to members of the MDA community or healthcare providers to attend the event, […]

Event Series MDA Engage ALS Virtual Symposium

MDA Engage ALS Virtual Symposium

Virtual

Join us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living,  ALS research updates, drug development roundtable discussion,  and much more. There is no cost to members of the MDA community or healthcare providers to attend the event, […]

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursdays at 5:00pm EST  for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu

ALS Drug Development Webinar Series Part 4: Site Considerations

Virtual

Join us for the fourth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance […]

Why Cortical Hyperexcitation Is Important

Virtual

The panel will discuss the importance of Cortical Hyperexcitation in ALS research. Speakers: Dr. Hande Ozdinler, PhD, A Long Swim Director of Science, and Steve Vucic, PhD, DSc, FRACP, FAHMS, senior staff specialist in neurology at Westmead Hospital, clinical academic and translational researcher at the University of Sydney.

Forum For Industry – Expanded Access: Great in Theory, Why Problematic in ALS?

Virtual

I AM ALS is pleased to host a forum for industry and advocates on Expanded Access featuring Alison Bateman-House, PhD, MPH, MA, Assistant Professor at NYU Grossman School of Medicine and co-chair of the Working Group on Compassionate Use and Preapproval Access (CUPA). The event will take place on Tuesday, May 18, at 4 pm […]