Education

ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS Biorepository is housed at the Healey Center for ALS at Mass General Hospital and Barrow Neurological Institute and overseen by the NEALS Biorepository Committee. Samples and data […]

Join us for the third installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance […]

Please join us on Thursdays at 5:00pm EST  for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu

Please join us on Thursdays at 5:00pm EST  for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu

Join us for the fourth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance […]

The panel will discuss the importance of Cortical Hyperexcitation in ALS research. Speakers: Dr. Hande Ozdinler, PhD, A Long Swim Director of Science, and Steve Vucic, PhD, DSc, FRACP, FAHMS, senior staff specialist in neurology at Westmead Hospital, clinical academic and translational researcher at the University of Sydney.

Please join us for a conversation about the results of this trial and the next steps for AMX0035. Register now!

Dr. James Berry (primary investigator) will review the importance of biomarkers and the REFINE-ALS study, provide a study status update, discuss recent changes to the study, including the option for remote study visits. We hope you will join us to learn more about REFINE-ALS and how to get involved.

I AM ALS is pleased to host a forum for industry and advocates on Expanded Access featuring Alison Bateman-House, PhD, MPH, MA, Assistant Professor at NYU Grossman School of Medicine and co-chair of the Working Group on Compassionate Use and Preapproval Access (CUPA). The event will take place on Tuesday, May 18, at 4 pm […]

Hear from Dr. Suma Babu about clinical trials actively recruiting at MGH and other sites throughout the country and meet the MGH Research Access Nurse, Judith Carey, who will talk to you about where to get started with research. Also, learn from Nadia Sethi about resources available to the community to find the right trial […]