Education
Weekly HEALEY ALS Platform Trial Webinar – Expanded Access
VirtualHeading into the new year, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, December 14th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs with our guest host, Dr. James Berry of Massachusetts General […]
Seeing ALS from All Angles
Sunday, December 17, 2023 1:00-2:00 p.m. ET Doctor Goodson will discuss his pathway to medicine and the doctor's side of the doctor patient relationship. He will describe his 25 years as a health care advocate. Finally, he will discuss the transition from doctor to ALS patient and consider the various perspectives for all those involved […]
Technical Assistance Webinars: RFA-NS-24-029: Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded
This is a reminder of our upcoming webinars related to RFA-NS-24-029 "Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required)”. NIH program and review staff will provide an overview of the RFA, including objectives, application instructions and review criteria and will be available to answer questions. Topic: Technical Assistance Webinar: RFA-NS-24-029 - Amyotrophic Lateral […]
Harnessing The Power of Citizen Research
ZoomDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support. Wednesday, January 10th, 4:00 PM Pacific Standard […]
Weekly HEALEY ALS Platform Trial Webinar – EAP discussion with guest speakers from the NIH
VirtualAs part of our weekly webinar series, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, January 11th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs with guest host, Dr. Amy Tsou, […]
Weekly HEALEY ALS Platform Trial Webinar – Pridopidine update with Prilenia Therapeutics
VirtualPridopidine update with Prilenia Therapeutics
Annual Global Clinical Trials Update
VirtualThis webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed.
ALS TDI Town Hall
VirtualALS Patient Fellows Share Insights from the ALS MND Symposium ALS Patient Fellows Share Insights from the ALS MND Symposium Thursday, January 25, 2024 | 3:00 - 4:00pm EDT Participate in our upcoming Town Hall on January 25th to hear from community members who attended the International Symposium on ALS/MND this past December. This event will […]
National ALS Registry: Learn How You Can Join the Fight Against ALS Confirmation
ZoomThe National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States as well as investigating the causes and risk factors for this disease. The Registry also connects persons with ALS with clinical trials and epidemiological studies, […]
Weekly HEALEY ALS Platform Trial Webinar – CNM-Au8 Update with Clene Nanomedicine
VirtualPlease join us on Thursday, January 25th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week we will be joined by representatives from […]