Education
National ALS Registry: Learn How You Can Join the Fight Against ALS.
VirtualNational ALS Registry: Learn How You Can Join the Fight Against ALS.
ALS & Relationships, Sex, and Intimacy
VirtualAbout the Program A person living with ALS may not feel comfortable addressing relationship, intimacy and sexual health changes that occur during their ALS journey with their healthcare providers. Although […]
FDA’s Rare Disease Day 2023
VirtualWe are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open for this virtual event. Dr. Robert M. Califf, Commissioner of Food and Drugs, will […]
Ask Me Anything ALS – Clinical Trials
VirtualWhile there are currently no cures for ALS, there are numerous clinical trials taking place right now across the country with a goal of finding safe and effective therapies. With […]
Clinical Trial Recruitment & Retention: A Path Forward
VirtualALS clinical trials must represent all people living with ALS including those from diverse genetic, racial/ethnic, socioeconomic, and geographical backgrounds.
In March 2022, I AM ALS hosted the inaugural I AM ALS Action Summit to engage stakeholders in the ALS community to improve the clinical trial experience for people living with ALS and their caregivers. Summit participants included people living with ALS, loved ones and caregivers, physicians, clinical research coordinators, advocacy organizations, biopharma allies, and key government stakeholders.
This webinar, which will take place on March 8th at 6pm ET, aims to inform the ALS community of the results from the Action Summit and will include an exchange of ideas around clinical trial recruitment and retention and ways in which you can get involved.
The 2023 Neurological Symposium Presented by The McCourt Foundation
Virtual or In PersonPlease join us for a FREE educational update for patients, family members, caregivers, and medical professionals. We are thrilled to be able to bring together our world-renowned partner physicians
and researchers from Mass General Hospital, Brigham & Women's Hospital, and Cedars-Sinai Hospital to share their latest research into cures and treatments for neurological diseases. Each session includes a 30-minute presentation and one hour Q&A. This in-person event is FREE and OPEN to all and will also be live-streamed for a wider geographical reach. Bring your questions, and join us for one, two or three sessions! Breakfast and lunch will be provided.
American Brain Coalition’s educational series: Regulatory 101
Federal agencies provide an important forum for the brain community to connect with policymakers and officials, including in support of efforts to deliver safe and effective treatments for brain conditions. […]
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, March 16th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc and Sabrina Paganoni, […]
Phase 2 Trial Of AP-101 In SOD1 And Sporadic ALS
VirtualIn this webinar, Dr. Angela Genge will discuss the research behind AP-10l and provide an overview of the trial and what study participation involves. The phase 2 trial of AP-101 is currently enrolling participants with Familial Amyotrophic Lateral Sclerosis and Sporadic Amyotrophic Lateral Sclerosis.
Young Faces of ALS (YFALS) Town Hall
VirtualDiscussion on Family and ALS Hosted by Young Faces of ALS and Her ALS Story Tuesday, March 21, 2023 | 6:00 - 7:00pm EDT Although family dynamics are always different, […]
ALS And Cognitive Functions
VirtualCognitive Changes in ALS - Thursday, March 23, 2023 12:00 - 1:00 p.m. CT About the Program Join us for our March ALS Learning Series discussing cognitive functions with Catherine […]
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, March 23rd at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc and Sabrina Paganoni, […]
Regimen F Drug Science and MOA Public Webinar
Please join us for the Regimen F Drug Science Q&A Webinar on Monday, March 27th from 5:00-6:00 pm Eastern time. This webinar is open to all, and it serves as a great opportunity to […]
NEALS Webinar: An Update on Tofersen
Tuesday, March 28, 2023 12:30 PM ET Please join us for a webinar update on tofersen moderated by NEALS Co-Chair Dr. Jinsy Andrews. Dr. Timothy Miller will provide background on […]
Genetic Counselling & Testing
VirtualFamilial or sporadic ALS/MND, the importance of genetic counselling and testing cant be emphasized enough. Join us for this scenario-based discussion which will look at real situations ranging from an […]
ABC Educational Webinar: What is ARPA-H?
Join us for an educational overview of the Advanced Research Projects Agency for Health (ARPA-H), the new government agency proposed by President Biden to improve the government’s ability to speed […]
Ask Me Anything ALS – Women Living with ALS
It’s often thought that ALS only affects older, white men. The reality is that an entire community of women are currently living with ALS and they’re working hard to change […]