Join us on June 9th, 11:00am ET for a webinar introducing the first Healey ALS MyMatch clinical trial- the ACACIA trial of oral digoxin. Healey ALS MyMatch is a novel, patient-centered, early phase, clinical trial initiative launched by the Healey & AMG Center for ALS at MGH. ALS MyMatch is a series of unique, custom-designed, Phase 1b/2a clinical trials, built using an agile infrastructure and […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
NEALS Webinar: Medication Administration via Enteral Feeding Tubes: Key Considerations for People Living with ALS Join us for a webinar presented by the NEALS Nutrition Committee! This session is open to everyone—caregivers, people living with ALS, and healthcare professionals alike. The webinar will focus on best practices for medication administration for individuals who require enteral […]
About the Program: Join us for our June ALS Learning Series webinar — a collaboration with the Healey Center Community Webinars. Catherine Small, Patient Navigator for Healey ALS Platform Trial, will provide updates on current research and the Acceleration Centers of Enrollment (ACE) initiative, while Anne Marie Doyle, from the Les Turner ALS Foundation, will discuss […]
Don't miss this free opportunity to learn about this important study and hear directly from Dr. James Berry, Associate Neurologist, Neurology at Massachusetts General Hospital and EverythingALS CEO Indu Navar. Please come with your questions and help us harness the power of citizen-driven research to make a lasting impact on the future of ALS treatments […]
Dr. Taga plans to discuss the following topics: Generating regionally specific neurons and astrocytes from human induced pluripotent stem cells Modeling the human corticospinal tract on a microfluidic chip Uncovering the role of disrupted axonal regeneration in ALS pathophysiology Don't miss this free opportunity to hear directly from leading experts, and ask them your questions, […]
Expanded Access Discussion with Dr. Rick Bedlack of Duke University
Writing can be a powerful way to express ourselves, share our stories, and connect with others – and sometimes it can feel intimidating to know where or how to begin. Whether you’re an experienced writer or someone who’s never put pen to paper, come join us for a discussion on the role and impact of […]
On Thursday, July 17th at 12pm ET, join I AM ALS and a panel of people living with ALS, medical researchers, and doctors for a discussion about brain donation. We’ll discuss the critical role of brain donation in research, answer frequently asked questions about the process, and hear how members of our community decided whether […]
Meeting Details: The speaker will start promptly at 7:00pm ET/4:00pm PT The meeting room will open at 6:30pm ET/3:30pm PT Questions for our Speaker? Submit your questions in the Zoom Chat during the webinar. If you still have questions after the event, please email us at info@everythingals.org
Date: Thursday, July 24, 2025, 12pm CT Registration link: https://us02web.zoom.us/webinar/register/WN_yWvfRY55Tbq-qAZAm08wTg#/registration Title: Voice Preservation Beyond Recording: Creating and Using My Preserved Voice About the Program: Join us for a comprehensive review of current best practices and tools in Message Banking, Voice Banking, and Voice Cloning, including the role of Artificial Intelligence (AI) in voice preservation. After a diagnosis of […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
Join us on July 24, 2025 at 7pm ET for a 75 minute informational session where we will explore the unique needs of people living with ALS in long-term care settings. You will hear from a panel of individuals living with ALS and health-care providers. 🧑⚕️ Tailored Focus:Explore the unique needs of people living with ALS in long-term care settings. From early-stage […]
Topic: End-of-Life Autonomy: A Conversation on ALS and Medical Aid in Dying Date & Time: Jul 29, 2025 01:00 PM Description Join us for a thoughtful and informative conversation with Dr. Robin Plumer and Jeremy Boal as we explore the topic of Medical Aid in Dying (MAID). Dr. Plumer will explain what MAID is, how […]