About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off in your home, have become much easier. Team Gleason’s mission is to have people living with ALS remain as independent as possible no matter where […]
Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to […]
Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community. Moderators: Gethin Thomas - Executive Director, Research | Motor Neurone Disease Australia Claire Magnussen, PhD - Program Manager, CAPTURE ALS, McGill […]
Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community Engagement and Outreach at the ALS Therapy Development Institute ALS Unfiltered is a series of live presentations and candid conversations about the science of ALS, drug […]
Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Mariah […]
ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and […]
Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at The University of California San Francisco (UCSF). He has authored over 200 scientific articles in the fields of AIDS, cancer and neurological disease since joining […]
Weekly Q&A with guest speaker Michael Elliott, MD, FAAN from Swedish Medical Center in WA
The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in the care of patients with dementia, including C9 carriers. Her lab at UCSF is developing novel CRISPR gene editing approaches for dementia and ALS, starting […]
You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have another disability Much more through the question and answer section Jinsy Andrews, MD, MSc, FAAN: Director of Neuromuscular Clinical Trials at Columbia University in the City […]
Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Shafeeq Ladha (Barrow Neurological Institute) The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS and illustrate what potential participants can expect when enrolling in Regimen E of the Healey […]
About the Program: Caregivers undergo changing dynamics and burnout when caring for a loved one. It’s important for others to maintain a more understanding and loving perspective so that they can cope effectively. Please join us on Thursday, October 6 from 12-1 p.m. (CT) for this month’s ALS Learning Series, “Navigating the Challenges of Caregiving […]
Weekly Q&A with guest speaker Catherine Douthwright, PhD, CCRP of UMass Worcester
