Stay connected to news in ALS research and get answers to your questions about observational research! Join us on Thursday, April 24th, at 5:00 pm EDT (4:00 pm CDT/2:00 pm PDT) for a webinar update about the Access for All in ALS (ALL ALS) Consortium. Guest speaker Dr. Mark Garret, along with Patient Navigator Myah Stone, will […]
Discover the Power of Your EHR Data in ALS Research. Join Dr. Danielle Boyce for a Town Hall to learn how ALS TDI's ARC Study is using electronic health records (EHRs) to drive ALS research breakthroughs. Dr. Boyce will discuss the current landscape of EHR research, revealing how ALS TDI is leveraging these records to advance our research […]
Don't miss this opportunity to hear directly from leading experts, and ask them your questions, as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research and finding a cure. Together, let's harness the power of citizen-driven research to make a lasting impact on the future of ALS treatments and support. […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
Don't miss this opportunity to hear directly from leading experts, and ask them your questions, as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research and finding a cure. Together, let's harness the power of citizen-driven research to make a lasting impact on the future of ALS treatments and support. […]
Join us for our May ALS Learning Series with Dr. Kelly Gwathmey from Virginia Commonwealth University. She will explore the causes and consequences of ALS diagnostic delay, along with potential solutions to address this problem. A Q&A will follow. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
Curious about how genetics play a role in ALS when there is no family history? Join us on 5/27 at 5pm EST for a free one-hour webinar led by Ms. Laynie Dratch, a licensed, certified genetic counselor at Penn Medicine. You’ll learn what genetic counseling and testing can (and can't) tell you, why it matters […]
Topic You Deserve to Know: a Conversation on Treatments, Trials, and Truths for the ALS Community Date & Time Selected Sessions: May 28, 2025 06:30 PM Description For ALS Awareness month, Roon is spotlighting key perspectives from ALS non-profit and health technology leaders, field-leading physicians and scientists, and people with lived experience. From updates on […]
Please join us on Thursday, June 5th, at 5:00 pm ET (4:00 pm CT/2:00 pm PT) for a webinar about Healey ALS MyMatch, an innovative early phase, biomarker-driven clinical trial program launched in 2025. Sabrina Paganoni, MD, PhD of Mass General Hospital will be joined by guest speaker Suma Babu, MBBS, MPH to share information about ALS […]
Join us on June 9th, 11:00am ET for a webinar introducing the first Healey ALS MyMatch clinical trial- the ACACIA trial of oral digoxin. Healey ALS MyMatch is a novel, patient-centered, early phase, clinical trial initiative launched by the Healey & AMG Center for ALS at MGH. ALS MyMatch is a series of unique, custom-designed, Phase 1b/2a clinical trials, built using an agile infrastructure and […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
