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Presented by Chan Zuckerberg Initiative at the 2022 Aspen Ideas Festival At just 37 years old, Brian and Sandra, who met and fell in love on the 2008 Obama campaign, found their world upended by Brian’s diagnosis of ALS and the possibility that he may have only six months to live. This is a story […] |
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This webinar will cover the vital need for patient involvement in ALS clinical trials in order to improve recruitment, retention and data quality, as well as readiness to adhere to impending regulatory changes. Join Paul Wicks, Ph.D., a neuropsychologist, independent consultant and Sano Genetics investor and Cathy Collet, a world-leading ALS advocate, for an important […]
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Please join us on Thursday, June 30th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speaker Gale […]
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Louisiana native Michael Holoway is a perfect addition to the Team Gleason Technology program. His experience in leadership, management and customer service is incredibly valuable for Team Gleason’s mission, but also critically important to the ALS community. In joining Team Gleason, Michael said, “the ability to bring positive change into people’s lives is the most […]
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Please join us on Thursday, July 7th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial. In addition, guest speaker James Berry, MD, MPH will join the webinar to discuss […]
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Integrative holistic therapies can play a major role in helping people feel better, especially when they are dealing with neurologic diseases. This month’s ALS Learning Series, "Complementary and Alternative Therapies for People Living with ALS and Caregivers," taking place on Thursday, July 14 from 12 – 1 p.m. (CT), will discuss how people living with […]
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Weekly Q&A with guest speaker Eufrosina Young, MD, Site Investigator at SUNY Upstate
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Time & Location Jul 20, 4:00 PM Zoom call About the Event EverythingALS is honored to announce our future guest; Leah Stavenhagen, Sunny Brous and Macey Hoaglund, who all have something in common - they were diagnosed with ALS in their late 20’s. They part of Her ALS Story, which is a group of women […]
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Please join us on Thursday, July 21st at 5:00 pm EST (4:00pm CST/2:00pm PST) for our weekly Q&A webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. In addition, they will be joined by […]
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ALS Town Hall: Discussion on Tegoprubart Phase 2a Results Led by Dr. David-Alexandre C. Gros and Dr. Steve Perrin of Eledon Pharmaceuticals Wednesday, July 27, 2022 | 3:00 - 4:00pm EDT On Wednesday, July 27, 2022, ALS TDI will be hosting a new ALS Town Hall discussion on tegoprubart. Tegoprubart is a potential treatment for […]
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Matthew Harms, MD Associate Professor of Neurology at Columbia University Thursday, July 28, 2022 1:00 - 2:00 PM EDT This webinar will provide an approachable overview of the major genes involved in ALS: what those genes are, how they lead to ALS, and what ideas they are giving scientists for treating all forms of ALS. […]
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Please join us on Thursday, July 28th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special discussion about placebos with […]
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About the Event Prior to the establishment of NeuroSense, Alon founded MediCan Consulting, a successful consultancy firm which worked and collaborated with many leading pharmaceutical R&D companies, including Mediwound, Chiasma, Teva, Sol-Gel, FutuRx, NeuroDerm and others. The firm’s diligent employees were pioneers, who paved the way to more efficient and accurate work in the industry, […]
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