Education
Calendar of Events
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Weekly HEALEY ALS Platform Trial Webinar
Weekly HEALEY ALS Platform Trial Webinar
Please join us on Thursday, April 29th at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD will present this week’s updates on the HEALEY ALS Platform Trial with guest speaker Eduardo Locatelli, MD, MPH, from Holy Cross Hospital and answer questions from the audience. Click here to register! If you have […]
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Maximizing Repositories to Accelerate ALS Research: Biofluids, Tissues, Cells and Data
Maximizing Repositories to Accelerate ALS Research: Biofluids, Tissues, Cells and Data
ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS Biorepository is housed at the Healey Center for ALS at Mass General Hospital and Barrow Neurological Institute and overseen by the NEALS Biorepository Committee. Samples and data […]
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ALS Drug Development Webinar Series Part 3: Ethical Considerations
ALS Drug Development Webinar Series Part 3: Ethical Considerations
Join us for the third installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance […]
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Weekly HEALEY ALS Platform Trial Webinar
Weekly HEALEY ALS Platform Trial Webinar
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
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MDA Engage ALS Virtual Symposium
MDA Engage ALS Virtual Symposium
Join us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living, ALS research updates, drug development roundtable discussion, and much more. There is no cost to members of the MDA community or healthcare providers to attend the event, […]
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MDA Engage ALS Virtual Symposium
MDA Engage ALS Virtual Symposium
Join us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living, ALS research updates, drug development roundtable discussion, and much more. There is no cost to members of the MDA community or healthcare providers to attend the event, […]
Weekly HEALEY ALS Platform Trial Webinar
Weekly HEALEY ALS Platform Trial Webinar
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
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ALS Drug Development Webinar Series Part 4: Site Considerations
ALS Drug Development Webinar Series Part 4: Site Considerations
Join us for the fourth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance […]
Why Cortical Hyperexcitation Is Important
Why Cortical Hyperexcitation Is Important
The panel will discuss the importance of Cortical Hyperexcitation in ALS research. Speakers: Dr. Hande Ozdinler, PhD, A Long Swim Director of Science, and Steve Vucic, PhD, DSc, FRACP, FAHMS, senior staff specialist in neurology at Westmead Hospital, clinical academic and translational researcher at the University of Sydney.
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An Update on the CENTAUR Trial: a Trial of AMX0035 in ALS
An Update on the CENTAUR Trial: a Trial of AMX0035 in ALS
Please join us for a conversation about the results of this trial and the next steps for AMX0035. Register now!
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REFINE-ALS: Finding Biomarkers of Edaravone (Radicava) Effect – From the Comfort of Your Home
REFINE-ALS: Finding Biomarkers of Edaravone (Radicava) Effect – From the Comfort of Your Home
Dr. James Berry (primary investigator) will review the importance of biomarkers and the REFINE-ALS study, provide a study status update, discuss recent changes to the study, including the option for remote study visits. We hope you will join us to learn more about REFINE-ALS and how to get involved.
Forum For Industry – Expanded Access: Great in Theory, Why Problematic in ALS?
Forum For Industry – Expanded Access: Great in Theory, Why Problematic in ALS?
I AM ALS is pleased to host a forum for industry and advocates on Expanded Access featuring Alison Bateman-House, PhD, MPH, MA, Assistant Professor at NYU Grossman School of Medicine and co-chair of the Working Group on Compassionate Use and Preapproval Access (CUPA). The event will take place on Tuesday, May 18, at 4 pm […]
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Current ALS Trial Opportunities: An Overview
Current ALS Trial Opportunities: An Overview
Hear from Dr. Suma Babu about clinical trials actively recruiting at MGH and other sites throughout the country and meet the MGH Research Access Nurse, Judith Carey, who will talk to you about where to get started with research. Also, learn from Nadia Sethi about resources available to the community to find the right trial […]
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ALS Learning Series: Take a Breath, Respiratory Support in ALS
ALS Learning Series: Take a Breath, Respiratory Support in ALS
In our May webinar, Dr. Coleman will be discussing respiratory support in ALS including non-invasive and invasive ventilation. About the Presenter: John M. Coleman III, MD. Associate Professor of Medicine and Neurology, Northwestern Medicine. Thu, May 20, 2021 12:00 AM - 1:00 PM CDT Register Here
Weekly HEALEY ALS Platform Trial Webinar
Weekly HEALEY ALS Platform Trial Webinar
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
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ALS Town Hall: A Research Discussion with ALS TDI’s New CEO
ALS Town Hall: A Research Discussion with ALS TDI’s New CEO
In the ALS Town Hall: A Research Discussion with ALS TDI's New CEO, our CEO and Chief Scientific Officer, Fernando Vieira M.D., will lead a research-focused conversation with the ALS community. Dr. Vieira will discuss ALS research, the current research at ALS TDI, and ALS TDI’s critical role in developing effective treatments for ALS. Any good discussion […]
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Weekly HEALEY ALS Platform Trial Webinar
Weekly HEALEY ALS Platform Trial Webinar
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
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Lou Gehrig Day: A Discussion with ‘Luckiest Man’ Author Jonathan Eig, hosted by WXRT’s Lin Brehmer
Lou Gehrig Day: A Discussion with ‘Luckiest Man’ Author Jonathan Eig, hosted by WXRT’s Lin Brehmer
Major League Baseball is officially honoring Lou Gehrig Day at ballparks across the country on June 2 and 3. To commemorate the occasion, please join us for a very special discussion on Wednesday, June 2 from 12:00 PM - 1:00 PM CDT with two longtime friends of the Les Turner ALS Foundation: Jonathan Eig, acclaimed […]
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Weekly HEALEY ALS Platform Trial Webinar
Weekly HEALEY ALS Platform Trial Webinar
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu